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Advanced Prostate Cancer Support Group

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A Step Towards Understanding How To Get A Fair Value For The Dollars Spent For Advanced Prostate Cancer Treatment

John Shearron, Advanced Prostate Cancer Support Group Leader, Shares His Perspective | PCRI

In the treatment of prostate cancer the first very expensive drug we had that was FDA approved was Provenge, with an initial cost of $93,000 for a one-months treatment protocol. Today, the cost is in excess of $106,000. According to the phase III clinical trial result Provenge extends life by a median of 4.1 months,

Features Of Pcsgs That Negatively Influence Mens Adjustment To Pca

Specialists rated nine items related to possible negative influences of PCSGs including, meeting with dominant members who push their own views, dissemination of inaccurate information, hearing negative experiences, creating conflict over treatment decisions, promoting a specific clinician, creating confusion, supplying irrelevant information, causing confrontation, and promoting a single therapy . PCSG meetings with dominant members, dissemination of inaccurate information, and hearing negative experiences were identified as the three leading negative influences of PCSGs affecting mens adjustment to PCa. The median response for the other six items was 3 with no specific negative factors being identified as particularly influential. In addition, some negative influences were apparent in the open-ended responses discussed below.

Negative factors how prostate cancer support groups influence mens adjustment to prostate cancer.

Facebook Groups Lead By The Prostate Cancer Foundation

The offer patients, families, and caregivers a place to find support and information. There are many different types of groups available to find one right for you. Some groups are large online communities, while others are facilitated by a mental health professional, a person with cancer, or a medical expert. Whatever your needs, there is a group out there for you.

Recommended Reading: What Foods Are Good For Prostate Health

Risk Factors Signs And Symptoms

There are several factors that can increase your risk of prostate cancer. Speak with your doctor if you believe you may be at risk for developing prostate cancer. Common risk factors include:

  • Age – Most men with prostate cancer are over 65 the disease is rare in men under 45.
  • Family History – A person is more likely to get prostate cancer if his father, brother or son had prostate cancer.
  • Race – Prostate cancer is more common among black men than white or Hispanic/Latino men. Its least common among Asian American/Pacific Islander and American Indian/Alaska Native men.
  • Prostate Changes – Men with high-grade Prostatic Intraepithelial Neoplasia , an abnormal cell condition, may be at increased risk of prostate cancer.

Upstate Men To Men Prostate Cancer Support Group

Prostate Cancer 10k/5k Run this weekend
  • One-on-one visits with a prostate cancer survivor
  • Community education
  • Outreach and collaboration with health care professionals

Upstate Men to Men Prostate Cancer Support Group Meets Monthly at: OASIS/HEALTHLINK One Telergy Parkway/6333 State Route 298 East Syracuse, NY 13057

Meetings are held at 5 PM on the last Thursday of every month except for major holidays. The group does not meet in December.

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Join Us In Our Efforts At Usoc

A support group can be an invaluable resource for coping with a prostate cancer diagnosis and preparing for treatment. Educating yourself about prostate cancer can reduce the risk of developing this disease and simplify the treatment process by allowing you to take preventative measures and identifying the signs and symptoms early. Join USOC on October 29th for the annual ZERO Prostate Cancer 5k in Charlotte, NC.

Whether you participate in the race or make a donation, you can make a significant contribution to this cause. As well as raising funds, the ZERO Prostate Cancer 5K provides the opportunity to share hope and declare one number above all others: ZERO. Prostate cancer patients and their families benefit greatly from your participation. Through the 5K, you will be able to show your love for the patients and provide emotional and financial support to them and their families. Lets raise awareness about this illness and bring hope to survivors across the board. Click the button below to get started. We cant wait to hear from you!

A Guide To Prostate Cancer Support Groups

It is important to have a strong support system when facing a prostate cancer diagnosis. Generally speaking, your loved ones serve as your primary support system however, community prostate cancer support groups foster unity among both patients and their families.

Continue reading to learn more about prostate cancer support groups, treatment options, and coping strategies.

Also Check: Can An Enlarged Prostate Cause Gas

New Advanced Prostate Cancer Support Group

  • New Advanced Prostate Cancer Support Group
  • More Latest News Articles

    Save the Date! September 26th from 18.00-19.30

    Message from our colleagues at Tackle Prostate Cancer, about their new online support group initiative. Those living with advanced prostate cancer might find this useful:

    Advanced Prostate Cancer Support Group

    Following feedback and requests from many people we have been trying to get an online group for people living with advanced prostate cancer started. We have now set a date for the first online meeting. We will have further details soon, but if you could let anyone know who is living with metastatic disease and may be interested in attending this new support group. If you are interested please contact

    PCaSO Prostate Cancer Support OrganisationPO Box 66

    PCaSO is a charitable incorporated organisation registered with the Charity Commission under charity number 1170536, and with the Information Commission. A group was originally set up in 1999 by David Rowlands and others in Emsworth, Hampshire, under the auspices of another charity. It became a separate unincorporated association in 2002 and in 2016/17 moved to the new form of governance. The previous charity number may still be seen in some older literature.

    Who Can Benefit From Joining A Prostate Cancer Support Group

    Why Prostate Cancer Survivor John Shearron Thinks Its Important To Do Your Research | PCRI

    Men affected by prostate cancer, either directly or indirectly, can benefit from joining a support group. Different hospitals and cancer centers offer support groups for men with prostate cancer and their loved ones. Patients can often find information about these groups on the website of the American Cancer Society.

    Recommended Reading: What To Expect After Radiation Treatment For Prostate Cancer

    Support Groups For Prostate Cancer

    Prostate cancer is the most common cancer diagnosed in American men after skin cancer. 1 in 7 men will be diagnosed with prostate cancer in their lifetime. This disease can be frightening and overwhelming, so its important to have a support system in place.

    Support groups for prostate cancer provide a forum for men affected by prostate cancer to share their experiences, learn from others, and find strength in numbers. This blog post will discuss prostate cancer, the risk factors for developing the disease, the signs and symptoms to watch out for, and the importance of support groups for those affected by prostate cancer.

    Colon And Rectal Cancer Screening Protocols

    Beginning at age 45, both men and women should be counseled by their doctors to follow

    We can help you learn whether were you diagnosed with a cancer that was allowed to grow unchecked for months, or even years, because your doctor:

    • failed to order the appropriate test
    • failed to properly interpret the test results
    • failed to educate you on the importance of screening tests or
    • failed to respond to symptoms you reported.

    The only thing worse than learning you have cancer is learning that your cancer could have been diagnosed sooner. If you suspect your doctor could/should have diagnosed your cancer earlier, contact the legal-medical team at the Porter Law Group for a free case evaluation

    You are not alone. Doctors routinely fail to order the correct tests or screening procedures, misread test results, and fail to carefully listen to patients whose symptoms should have raised a red flag. Weve helped countless families get answers to their questions after they learned of a cancer diagnosis. Learn more about the stories of clients we have helped, and the results* we have obtained for cancer victims.

    Did your cancer grow unchecked for months, or even years, because your doctor failed to provide you with adequate care and treatment?

    Learn more about your specific type of cancer, and the tools your doctor had available to detect your cancer at an early stage:

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    Benefits Of A Support Group

    Sure, you could speak to your care team about all that youre facing, but a support group is different. Its important for prostate cancer patients with advanced disease to get emotional support from people who have experiences similar to themselves because the patients perspective sometimes is very different from what they get from the healthcare providers, says Ash Tewari, M.D., system chair in the department of urology at Mount Sinai Heath System in New York City. Support groups provide a means to not fight prostate cancer alone.

    Indicates A Cancer Support Community Or Gilda’s Club Primary Location

    Webinar: Advanced Prostate Cancer Management

    Dont see a location near you?

    Contact our toll-free Cancer Support Helpline at to receive resources and information targeted to your specific needs. You can also join MyLifeLine, our online community platform which connects patients and caregivers with their own personal support community and to others like them on discussion boards.

    Interested in bringing Cancer Support Communitys program to your area?

    We welcome individuals and groups eager to bring support services to people impacted by cancer in their communities. All licensed Cancer Support Community locations are independent, tax-exempt organizations. Our team has guided many groups through the process of opening, staffing, and licensing Cancer Support Community partners. For more information, email or call 202-659-9709 and ask for the Partner Relations Department.

    Also Check: What Causes Prostate Gland Infection

    Features Of Pcsgs That Positively Influence Mens Adjustment To Pca

    Respondents provided ratings of seven features of PCSGs that were potentially positive influences on mens adjustment to PCa . Ratings of these features were uniformly high . All seven characteristics were identified as important benefits. While friendship was rated the lowest of the items, sharing experiences and emotional support were highlighted as the strongest factors positively influencing mens adjustment to PCa.

    Positive factors how prostate cancer support groups influence mens adjustment to prostate cancer.

    What Are Prostate Cancer Support Groups

    For many men, a diagnosis of prostate cancer is a shock. In addition to the physical challenges the disease poses, men must also grapple with cancers emotional and psychological impact. A cancer diagnosis can be a lonely and isolating experience, but support groups provide a forum for patients to connect with others facing similar challenges.

    For example, some men may feel isolated and alone when dealing with their diagnosis. Others may struggle with anxiety or depression. A support group provides a forum for men affected by prostate cancer to share their experiences and find strength in a community. Whether dealing with prostate cancer or supporting a loved one through treatment, a support group can be a valuable resource.

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    Prostate Cancer Patient Support Group

    CancerCare has a 15-week online support group. Co-sponsored by the National Alliance of State Prostate Cancer Coalitions , this group is led by an oncology social worker. It provides a safe place for patients to give and receive support from one another. Youll also have access to useful resources and information while in this group.

    Cancer Education And Support Groups

    Treatment advances in metastatic prostate cancer – Dr. Edmond Kwan

    We offer patient guides, webinars, support groups and classes to help you:

    • Learn about treatments such as chemotherapy and cell transplant therapy.
    • Learn about living your best life after a bone marrow/stem cell transplant.
    • Connect with other patients and families coping with cancer.
    • Ease stress through yoga and mindfulness.

    Recommended Reading: What Is The Latest Treatment For Enlarged Prostate

    Finding The Right Group For You

    There are a variety of different types of support groups. Some are run by large organizations that provide care. These groups might be facilitated by a medical professional or someone in the mental health field. Other online groups might be run by a network of volunteers who have gone through the same decisions and emotions that you are. Given how common prostate cancer is , its not surprising that there are plenty of groups to choose from.

    Reasons For Not Attending Pcsgs

    Perceived reasons for not attending PCSGs were assessed with seven items. Privacy issues was the most clearly endorsed reason for not attending PCSGs , followed by ignorance of PCSGs . Items including no need,having enough information, and a desire to move past the PCa experience, were also highly endorsed by PCa specialists as reasons why some men might prefer not to attend PCSGs.

    Reasons why men choose not to attend a prostate cancer support group.

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    Why Join A Prostate Cancer Support Group

    Support groups provide people impacted by prostate cancer with an opportunity to be with others who have a common purpose. While every prostate cancer diagnosis is unique, members of support groups often have similar feelings, worries, and concerns. Finding a support group may benefit you or your loved one in many ways, including:

    • Feeling less lonely or isolated
    • Improving understanding of prostate cancer treatment and side effects
    • Getting practical feedback about treatment options
    • Talking openly and honestly about your feelings
    • Improving skills to cope with challenges
    • Reducing distress, depression, anxiety or fatigue
    • Gaining a sense of empowerment
    • Learning about education, financial assistance, and other resources

    This video brought together men from diverse prostate cancer support groups to share their experiences and how being part of a community can be a source of strength. By confiding in other men with prostate cancer, theyve found information and support.

    If you or a loved one has been diagnosed with prostate cancer, you are not alone.

    Interested in becoming a Support Group Leader? View our Leading a ZERO Us TOO Support Group sheet now!

    Due to the ongoing COVID-19 pandemic, most Support Groups are meeting virtually, however, some are now meeting in person and some are using a hybrid. Please check back often as we continue to make updates!

    Premier Sponsors:

    Huntsville 2nd Thursday of the month 7:00 PM CT David McElhaney 407-341-4462

    Las Vegas: times vary

    How To Cope After Diagnosis

    Prostate cancer

    Dealing with a cancer diagnosis can be difficult on both your physical and mental health. In order to avoid and properly manage any anxiety and depression that you may experience as a result of your diagnosis, it is essential that you seek the appropriate counseling. Your primary care provider or specialist, such as USOC, can provide you with a list of options for coping appropriately with your mental health concerns.

    Prostate cancer affects the patients loved ones as well in terms of their emotional wellbeing. Keeping everyone informed and involving them in decision-making can be beneficial for all parties. In most cases, a patients spouse or partner participates in obtaining information about the disease, scheduling and attending medical appointments, and making treatment and monitoring decisions.

    In addition to coping with your prostate cancer diagnosis, you can also inform your loved ones of any risks they may face. Having a close relative with prostate cancer can increase a mans risk for the disease, so it may be appropriate to discuss taking measures to lower the risk with adult sons and brothers. Certain inherited or genetic factors may increase the risk in some families such as:

    • Hereditary Non-Polyposis Colorectal Cancer, or HNPCC

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    Serving People Impacted By Cancer

    Whether youre a patient, family member, friend, loved one, or caregiver, the Cancer Support Community offers a variety of professionally-led programs designed to assist you. We have over 175 locations worldwide, with programs that include support groups, yoga classes, and educational workshops. We provide something for every age group and life situation, including children, teen, and families affected by cancer. Best of all, our programs are offered at no cost to anyone impacted by a cancer diagnosis. Check out our list of locations below and become a part of our caring and supportive community today.

    PLEASE NOTE: Our locations are continuing to provide innovative and compassionate care through telephonic and digital channels. Each location has ensured that support groups, navigation, referrals to resources, and educational offerings are available to all those in need.

    The Importance Of Support Groups For Prostate Cancer

    When men are diagnosed with prostate cancer, they often feel isolated and alone. Talking about such a personal issue can be difficult, even with close friends or family members. However, theres nothing wrong with seeking support from others with similar experiences. A group like this helps you feel less alone when going through an illness or situation that seems impossible. The prostate cancer community offers a safe place for men to share their stories and learn what it takes during this difficult time in life.

    Likewise, cancer support communities can be invaluable resources for newly diagnosed patients with prostate cancer as they navigate their treatment options. These groups can also support men dealing with prostate cancer recurrence or the side effects of treatment.

    A support group is an essential part of their life journey toward recovery for many men. Moreover, patients can find strength in numbers and receive the necessary emotional support to cope with their diagnosis. In addition, they can learn about new treatments and share tips on how to manage side effects.

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    Why A Prostate Cancer Support Group

    • Prostate Cancer Support Group are places to listen, ask questions, and share thoughts confidentially.
    • Our goal is to help men and their loved ones learn more about how to cope with living after a cancer diagnosis. We strive to provide a forum to learn about treatment and post-treatment options through presentations by medical professionals, written materials, and most importantly, discussion with other men who are having or have had similar experiences.
    • Gaining and sharing knowledge helps everyone cope and achieve better outcomes. All meetings are free to all participants.

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